There are more than 65 million family caregivers in this country fulfilling a vital role. These individuals work tirelessly to maintain a high level of care for their loved ones. They are most familiar with the recipients’ medicine regimen; they are the most knowledgeable about the treatment; and they understand best the dietary and exercise regimen. This compassionate role can be daunting. Caregivers often put the needs of others ahead of their own which can lead to mental and physical exhaustion. It is often said “you cannot take care of someone if don’t take care of yourself”. When you are a caregiver, where do you go for answers and assistance? The following organizations can be a resource to assist in the caregiver’s well-being.
Sign up for Chanda’s Caregiver Corner (more information below)
ALS Association: For Caregivers
This website includes information of interest to ALS caregivers related to topics such as: Assistive Technology for Caregivers, Caregiving Tips and Hints, The ALS Association Care Connection, Coping With Burnout, From One Caregiver to Another, Respite Care.
Family Caregiver Alliance
Established in 2001 as a program of Family Caregiver Alliance, the National Center on Caregiving (NCC) works to advance the development of high-quality, cost-effective policies and programs for caregivers in every state in the country. Uniting research, public policy and services, the NCC serves as a central source of information on caregiving and long-term care issues for policy makers, service providers, media, funders and family caregivers throughout the country.
Lotsa Helping Hands
Lotsa Helping Hands is a free caregiving coordination web service that provides a private, group calendar where tasks for which a caregiver needs assistance can be posted. Family and friends may visit the site and sign up online for a task. The website generates a summary report showing who has volunteered for which tasks and which tasks remain unassigned. The site tracks each task and notification and reminder emails are sent to the appropriate parties.
WISER (Women’s Institute for a Secure Retirement)
Financial Steps for Caregivers: What You Need to Know About Money and Retirement is designed to help you identify financial decisions you may face as a caregiver. The decision to become a caregiver can affect both your short-term and long-term financial security, including your own retirement.
MDA ALS Caregiver’s Guide
The MDA ALS Caregiver’s Guide is a companion piece to MDA’s publication, Everyday Life with ALS: A Practical Guide. While Everyday Life is written for the person with ALS, this book is addressed to the family caregiver, whose experience of ALS is certainly as intense and all-consuming as that of the person with the disease.
*Hyperlinks to web sites outside of The Brigance Brigade Foundation are provided as a browsing convenience and do not represent an endorsement of the linked site by the Brigance Brigade Foundation.
Chanda’s Caregiver Corner, a new program of the Brigance Brigade Foundation, was created to provide a platform for ALS caregivers to receive support, share their experiences, and hear from other individuals struggling with the same challenges they are from day to day. Through Chanda’s Caregiver Corner’s ongoing programs, campaigns and contests, the Brigance Brigade Foundation’s goal is to touch the lives of ALS caregivers in positive ways in an effort to show them that they are not alone, and that the work they do does not go unnoticed. We seek to improve the quality of life of caregivers through connections, shared experiences, and love.
- Caregiver Welcome Package – Join our community of caregivers and receive a special note and welcome gift from Chanda!
- Birthday E-Greetings – Tell Chanda when your birthday is!
- ChandaGram – Send Chanda your email address and look for quarterly cards of support in your inbox!
- Caregiver Merchandise – As our ranks grow, keep your eyes out for special caregiver merchandise through the Brigance Brigade Foundation online store.
- National Family Caregivers Awareness Month – Each November, in honor of National Family Caregivers Awareness Month, Chanda’s Caregiver Corner will run a special online campaign with selected winners receiving a prize! Follow us on Facebook and Twitter for news and updates!
- Annual BBF 5.7K Championship Run & 1.57 Mile Family Run/Walk – Join us each year at the 5.7K and sport your caregiver merchandise to show the crowd you are part of our proud community!
Chanda’s Caregiver Corner Video Series:
Hear directly from Chanda about her ex
periences and feelings becoming a caregiver for a person with ALS.
If you have a question for Chanda, or are a caregiver who would like to be notified about caregiver contests and campaigns, please click here to send us your information.