ALS Association: Newly Diagnosed:
The ALS Association is a national non-profit organization fighting Lou Gehrig’s Disease on every front. By leading the way in global research, providing assistance for people with ALS through a nationwide network of chapters, coordinating multidisciplinary care through certified clinical care centers, and fostering government partnerships, The Association builds hope and enhances quality of life while aggressively searching for new treatments and a cure.
Everyday Life with ALS:
A Practical Guide: MDA is the nonprofit health agency dedicated to finding treatments and cures for muscular dystrophy, ALS and related diseases by funding worldwide research. MDA also provides comprehensive health care and support services, advocacy and education.
The Agency for Toxic Substances and Disease Registry (ATSDR) is a federal public health agency of the U.S. Department of Health and Human Services. ATSDR serves the public by using the best science, taking responsive public health actions, and providing trusted health information to prevent harmful exposures and diseases related to toxic substances. This site allows Persons with ALS (PALS) the opportunity to enroll in the National ALS Registry. The goal of the National ALS Registry is to collect information to help scientists learn more about ALS. To get the best information, it is important to get as many PALS as possible to take part.
PatientsLikeMe is committed to putting patients first. They do this by providing a better, more effective way for patients to share their real-world health experiences in order to help themselves, other patients like them and organizations that focus on their conditions.
Social Security Administration, Compassionate Allowances:
Compassionate Allowances is a nationwide program of the U.S. Social Security Administration that is a way of quickly identifying diseases and other medical conditions that invariably qualify under the Listing of Impairments based on minimal objective medical information. Compassionate Allowances expedites Social Security disability decisions to ensure that Americans with the most serious disabilities receive their benefits as quickly as possible.
Social Security Administration pamphlet, “Apply Online for Disability Benefits.”